Welcome to the Swedish Association of

TUBEROUS SCLEROSIS COMPLEX

Together we can make everyday life easier!

The Swedish Association of Tuberous Sclerosis Complex was founded in 1991 at the initiative of the parents. Today the Association has over 650 members, individuals, families, and professionals. We organize lectures and family weekends.
A member-magazine is published at least twice a year.

Of course you know that the TSC association in Sweden also has a Facebook page!?

Follow us there, and you'll always get a message as soon as we add new information

on the website.

A fantastic book of facts

Tuberous Sclerosis Complex

by: David J. Kwiatkowski,

Vicky Holets Whittemore

and Elisabeth A. Thiele

The book is written in English and contains all the comprehensive facts about the disease.

The book should be a must for all physicians with TSC patients but also interesting for all of us.

Tell your doctor about this book please!

You can order the book through Adlibris.

The association's main tasks are to:

* support each other and provide opportunities for sharing experiences

* increase the knowledge of tuberous sclerosis complex

* work to develop and coordinate the efforts for individuals with tuberous sclerosis complex

* monitor current research and spread information on recent developments

* support research and maintain international contacts

* collaborate with other disability organizations on common issues


If you have questions or concerns, please do not hesitate to contact any of us in the TS association's board:

Annika Hallberg Juhlin, Chair e-mail

Bo Karlberg, vice Chair e-mail

Kerstin Anderlind, Secretary e-mail

Karin Aadnöy, Treasurer

Mari Eriksson, Member

Christina Drangel, Member

Sofia Sahl, Member

Pia Lundström, Substitute